Panel Discussion on Parkinson’s Disease awareness month April 7 2016

Panel Discussion on Parkinson’s Disease awareness month April 7 2016

Like the past years PPSO-E celebrated Parkinson awareness month by organizing different events.

World Parkinson Month (April) was celebrated by organizing different events. Among these was “”Celebration of World Parkinson month ’’. It was celebrated on April month of each year. April was the birth month of James Parkinson an English Physician who described and wrote about Parkinson Disease.

For Parkinson Patients support organization – Ethiopia April is a special month in which we successfully reached the highest public awareness stage. In this years’ celebration, we managed to conduct two big events.

  1. Panel discussion for the celebration of World Parkinson month

This event was held on Wabi Shebele Hotel meeting room. More than 60 people attended with a heavy media presence both from print media and FM radio stations.

Facilitation for the panel disecussion was done by Dr.Seid, a known Neurologist and Dean of the Neurology in Addis Ababa University. He led the meeting and translated Amharic to English and vice versa for the benefit of both Amharic and English speakers.

Welcoming speech was done by W/ro Kibra Kebede, the founder of PPSO-E. She explained the achievement so far and the challenges in relation to funding, Donor, transport, professional staff and others. Finally she said the motto of the year is “Be Strong” and explained how the patients should be strong in fighting Parkinson Disease.

The second speaker was Dr. Dereje. Dr Dereje presented what Parkinson is and its management methods.

From the side of care giver, W/t  Abonesh emotionally explained how much her mother has suffered by Parkinson and   PD affected the family economically as well as socially. She explained how she came to know about her mother’s illness and her role as a caregiver. She told the Participants that she has no money to pay for house rent and that she is keeping her parents around church. She worked in the city and walked long distances to spend the night with her parents.

Ato wondyirad, representing the Parkinson patients and thanked PPSO-E for the help he obtained.  He spent the time allocated for him explain the benefit obtained from PPSO-E and the need for fighting back Parkinson.

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After a short discussion for ideas and recommendations, the final keynote speaker was Dr. Molla, who is representative for the Ministry of Health, non-communicable diseases department, he acknowledged the work done by PPSO-E and he promised to work very hard and support the organization for government recognition of putting Parkinson disease in the essential disease list.

Clothes donated for Parkinson Patients

Clothes donated for Parkinson Patients

April is Parkinsons Disease awareness raising month. On April 28, 2016, Clothes were donated for 16 men and 15 women with parkinson’s disease.

Training for doctors

Training for doctors

PPSO-E conducted a successful training on Parkinson for doctors on PD which is very essential to the objective and sustainability of the organization’s activities.
A Regional health Bureau and Federal Ministry of Health also facilitated in calling the doctors for the training. PPSO-E is greatly thankful to the Addis Ababa regional health bureau for writing letters and making phone calls to gather the doctors for the training.
All federal hospitals under Ministry of Health have sent participants. No private hospital sent participant to attend the training regardless of repeated attempt to approach through A.A FMAHACA & association of private hospitals, both in person & phone calls.

 

Doctors

A total of 8 specialist professors from neurology department in AAU of health science were engaged as trainers

At the end of the training the Participants proposed the following solutions

• Everybody & government have to support PPSO-E
• It would be helpful if we train GP from the countryside to address all society & promote early diagnosis. It should also be given to regional hospital and all GPs should undergo this training.
• Support call/SMS center should be available for these patients
• Make the training continuous

Founder of Parkinsons Patients Support Organization Ethiopia on the spotlight for Association of Women in Business

Founder of Parkinsons Patients Support Organization Ethiopia on the spotlight for Association of Women in Business

Founder of Parkinson’s Patients Support Organization Ethiopia Kibra Kebede was spotlighted in the Association of Women in Business webisite  Click Here to read more.

Phone Consultancy

Phone Consultancy

Phone consultancy service has been given to Parkinson patients with regards to how to manage their illness and to relive their stress

African Post Magazine

African Post Magazine

African Post Magazine wrote a feature about Parkinson patient support organization Ethiopia and Parkinson’s disease.

Ethiopian Herald

Ethiopian Herald

Ethiopian Herald did a piece about Parkinson Patients Support Organization Ethiopia and Parkinson’s Disease.

Interview with Addis Zemen Newspaper

Interview with Addis Zemen Newspaper

Addis Zemen Newspaper wrote a piece about Parkinson’s Disease and the Parkinson Patients Support Organization – Ethiopia.

Interview with Yegna Press Newspaper

Interview with Yegna Press Newspaper

Yegna Press newspaper interviewed the Executive Director of PPSO-E, Kibra Kebede about Parkinson’s disease and the social implications in the Ethiopian society. Read below for the whole article

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Show about PPSO-E on FM 93.1

Show about PPSO-E on FM 93.1

PPSO-E was featured in one of the shows on Zami FM 90.7. The show gave out information about the disease, what .planned activities the organization had and what the patients were experiencing.