About Us

What is Parkinson?

Parkinson’s Disease is a progressive degenerative disorder of the central nervous system.

The primary symptoms are shaking (resting tremor), rigidity, slowness of movement, postural instability and several secondary symptoms. These include sleep disorder, constipation, speech disorder and others. In the early stages patients can function independently in carrying out daily activities. But as the disease  progresses, disability increases and quality of life deteriorates. In advanced stages caregiver assistance becomes essential.

The Need for the Establishment of our Organization

Although Parkinson’s requires a lot of support in Ethiopia, there is no organized group that works on Parkinson’s. Realizing the problems of patients and there care givers, few patients established Parkinson Patients Association – Ethiopia (PPA-E) in May 2011. PPA-E is registered under the Charities and Society Agency. We are second

“Our aim is to raise awareness to Parkinson patients and their caregiver about Parkinson’s , to ensure that all people with Parkinson’s and their families have access to the right management and the right treatment at the right time.” Founder and President Mrs. Kibra Kebede.

The Goal of PPA-E

Parkinson Patients and their care givers must live a quality life.

Strategies of PPA-E

– Working in collaboration with government and other concerned organizations

– Encourage and support the research  on Parkinson disease and/or Parkinson patients

– Networking with similar organizations in Ethiopia and abroad

Project area:

Currently the association is working in Addis Ababa with a possibility of extension to cities all over the country.

Activities

– Public awareness using media, distributing flyers and organizing workshops

– Registered Parkinson patients to be a member of the  Association

– Providing trainings on Parkinson disease management for patients and the best caring practices for care givers.

– Organized experience sharing forum for Parkinson patients

– Free drug or money support for the poorest members for partial covering of their medical expense.

– Consultation service for members or non member through personal appearance or through telephone.

– Free drug or money support for the poorest members for partial covering of their medical expense.

– Consultation service for members or non member through personal appearance or through telephone.

 Our Motto: “Staying in rhythm with life”

What we inspired

– Implementing activities that benefits Parkinson patients, care givers and the general public

– Solicit free or subsidized drug support

– Implementing exercise, speech therapy etc. in our place.

– Establish the Association’s own Multipurpose Center.

 

The association had been informed by Ethiopian Charities and Society Agency to change from Parkinson Patients Association – Ethiopia to Parkinson Support Organization – Ethiopia (government policy) and so the change has been made. However there is no significant change in the goals and objectives of the organization. PPSO-E is the second in Africa following South Africa.